A bout of ulcerative colitis in 2018 started a downward spiral for Morgan McCoy's health. In 2019, a blood clot in her left leg led to amputation. Then, a lymphedema diagnosis evidenced by 30 pounds of fluid. You'd never know any of this by the smile on Morgan's face. Her credo? "I could pout and be sad or depressed, or I can get up and just keep going. It's a choice."
Diagnosed with lymphedema as a baby, Blanche Pepitone had her first surgery at 18 months old.
Her parents and siblings raised her to live life fully, regardless of her condition, and that has been Blanche's lifelong credo: "You've got to decide how much living you want to do and do what it takes to live that life."
The May Lipedema Patient Roundtable featured a wide range of topics, including venous ultrasounds and the vein connection to lipedema, the differences between lipedema fat and non-lipedema fat, obesogens and toxins that impact our overall health, and the signs of Ehlers-Danlos.
Lap band surgery resulted in the loss of 171 pounds, but why were her calves still 26 inches each? After the successful weight loss, walking 14 miles a day, and eating a very restrictive diet, she concluded: "This was not just metabolic obesity." Her knees were dislocating 7 - 8 times a day. The social lymphedema communities were a tremendous help to Susan - and then she discovered lipedema.